The Art of Caregiving
You are reading this essay because, either you are suffering from insomnia, or perhaps had some time to kill….or just maybe, you are a caregiver seeking recommendations and advice from someone who has been where you are today!
When approached to write a series of articles on care-giving, aging loved ones and home renovation-related topics, I didn't know where to begin. Do I begin with a life event that precipitates a life change, do I begin with an aging loved one….or with the caregiver. As the primary caregiver for my family, I am compelled to begin with the function and role of the primary caregiver. My personal experience and hence, perspective is in terms of providing care and support for my aging parents. Many of the approaches and techniques are applicable for people with disabilities of any age.
Caregivers come in all shapes, sizes, ages, talent and background level. Some are volunteers, some are family members…others are professional with designations such as a Certified Nursing Assistant. My writings and presentations concern the role of caregiving and not specific positions or titles.
The role of the caregiver, whether professional or personal, is a critical and extremely valuable one. Unfortunately, the caregiving profession isn't as developed in terms of compensation, training and recruitment to reflect the importance of the job. As a result, securing a qualified and compassionate caregiver can be a daunting challenge. Matching the qualifications, talents and availability with the needs of your loved one becomes time-consuming and tedious.
Providing personal care yourself to a loved one becomes very time-consuming, stressful and requires much thought and preparation; some of which will be included in a future essay. I heard recently, "If you are planning to care for a loved one yourself, prepare yourself to give up your life for them". Profound words that we will address in a future essay. The time requirements can be daunting and unrealistic for many of us.
The actual and specific duties of a professional caregiver or Aide are regulated by state and are not included in our essay today. The bottom line--- are the needs of your loved one(s) being met adequately by family members, friends and/or professional Aides.
Caregiving can be rewarding, either part-time or full-time. Family members and friends learn how to provide quality care over time.
Time to smell the coffee—(the realities of the job)
- Duties can be messy, demeaning and very basic (depending on the needs of the patient/loved one being served.)
- Compensation can be disappointing, especially when one utilizes an agency for contractual work. The agency takes their cut and pays the worker a fraction of what the family pays the agency.
- Training is usually limited for most jobs; but is required for certain positions, such as Certified Nursing Assistant
- Burn-out is common
- Patience, tact, diplomacy and compassion are essential elements for caregivers to survive and be effective in their roles.
Being a caregiver is easier when you live close to your parents. It becomes very challenging when distance is a problem. Part of this preparation for becoming a caregiver is to adequately evaluate the practical elements of the supportive role.
There are several key components of the care-giving role that I am compelled to share at this time. After three years as the primary supporter of my folks, I am familiar with many aspects of the role. Let's begin with some basic assumptions:
- Anticipate that many of your helpful ideas, suggestions and recommendation to be questioned or considered with much reluctance. The status quo is always more comfortable and certainly more convenient than any changes, regardless of how important or practical the changes might be. "Change" is to be avoided in the minds of many seniors.
- Interpersonal communication in the household can become strained, especially in cases of hearing impairments. The use of hearing enhancement devices can be helpful, but only when used! Many people simple don't use them, for various reasons. Raising one's voice to be heard can unintentionally convey an attitude of resentment, anger, frustration, etc. Be aware of the dangers of raising your voice. Your tone is important! There are other methods to be understood by a hearing impaired individual….try speaking slowly and distinctly directly to them…in front of them; at the very least, speak to each other in the same room!
- Your life, as a caregiver, may become very crowded and stressful, while that of the family or individual that you are supporting will probably slow down. The caregiver cannot be in a rush! Activities and communication are all toned down and slowed down. It simply takes longer for many seniors and individuals with disabilities. Be patient!
I have frequently felt in a constant rush, or deadline. This is probably caused due to my own responsibilities in addition to supporting my parents. This constant feeling of pressure and stress can take its toll on your health and wellness.
- Taking care of yourself, while necessary, can be interpreted as indulgent and self-centered by those you serve. Take time to reenergize, recoup, regroup and recharge your own batteries! It is essential.
- Know your own strengths and limitations for providing effective support. Going beyond your limitations or tolerance can be disastrous for everyone.
Care for the caregiver
There may be times when you, as the caregiver, cannot cope alone with the ordeal, challenges and responsibilities of supporting a loved one with disabilities regardless of age. It is then that you need to know the symptoms of potential problems and to act before it is too late, my friend. Here are a few symptoms:
- Harsh and insensitive responses to simple questions and comments …from anyone! Frequent irritability and impatience with yourself and others.
- Constant fatigue
- Poor sleeping
- Feeling overwhelmed for long periods of time
- Lack of hope and happiness
When you're feeling pressured and stressed, start by taking ten deep breaths! Restore some good air you're your lungs! Remind yourself that on the airlines when the oxygen runs low or the pressure in the cabin becomes insufficient, the masks descend from the ceiling of the aircraft. The instructions are to cover YOUR own mouth before assisting your traveling dependent (child or other)!! Although common sense, it is important to remember. Everyone has difficult days, no matter how patient you are!
Knowing how to navigate the potholes and speedbumps in life is an essential skill for survival today!
Compensation, nutrition, return-on-investment, intrinsic pay-back and other forms of "feeding" are important considerations when entering or assuming the role of caregiver. If you have the opportunity, carefully evaluate your own expectations, limitations and needs prior to electing to perform serious care giving duties. In reality, family members are thrust into the role without preparation, training or careful assessment of needs, etc. We must learn "on the fly" and do what we can along the way.
Proper nutrition, rest, exercise and other human needs are important but too often get deferred or put aside as a "non-priority". I find myself casting away my own needs, business, personal desires and lifestyle to attend to my aging loved ones in their /time of crisis. Their "time of crisis" has lasted for about eighteen months and I am feeling as if I am "running on empty". A car can only run so far without gas…. likewise, we humans can only exist so long without proper support, sustenance, care and nutrition. Know when the time for action and change is at hand!
Compensation, nutrition, return-on-investment, intrinsic pay-back and other forms of "feeding" are important considerations when entering or assuming the role of caregiver. If you have the opportunity, carefully evaluate your own expectations, limitations and needs prior to electing to perform serious care giving duties. In reality, family members are thrust into the role without preparation, training or careful assessment of needs, etc.
Proper nutrition, rest and other human needs are important but too often get deferred or put aside as a "non-priority". I find myself casting away my own needs, desires and lifestyle to attend to my aging loved ones in their time of crisis. This "time of crisis" has lasted for about eighteen months and I am feeling as if I am "running on empty". A car can only run so far without gas….likewise, we humans can only exist so long without proper support, sustenance, care and nutrition.
Tips for your own wellness--
- Build into your own weekly schedule, some exercise, proper nutrition and rest. I know what you're thinking, I must be on drugs….or perhaps should be!! The reality is that you cannot do a good job for others when you are ill or run down!
- Balance and blend- Easier said than done, but essential. Schedule hobbies, crafts, sociability and other things that are important to YOU into your weekly routine. Skills, sports and things you enjoy are generally things you are good at and get benefit from doing. Consequently, in times of distress, it often helps to make time to do those things you used to enjoy, especially when they require skill. Most importantly, they give you satisfaction.
- Stay connected with your friends and family members.
- Enjoy life, when you can. Learn, or perhaps relearn, how to laugh and smile! Don't feel guilty about having fun and enjoying life.
- Learn about the benefits of aromatherapy, good music, meditation, yoga and other helpful techniques and philosophies to get you through the stressful times.
- "Feeding for the Caregiver"—remember that you are what you eat! In simple terms, what and how we feed ourselves impact our performance and overall wellness.
- Remember, life can be rewarding, fun and a positive journey.
- Never postpone doing something nice for someone else or expressing your love for them. Life can change in a heartbeat!
- Knowing when to reach for help and more information is important. Your local hospital or healthcare provider may have support groups in your area.
Here are two sources for support and information:
The National Family Caregivers Association
Toll free: 1-800-896-3650
Toll free: 1-800-658-8898
By Chuck Oakes, an entertaining speaker, consultant and experienced caregiver with first-hand knowledge of homecare and over twenty years helping individuals and organizations cope with change. As a certified "Aging in Place Specialist" from the National Association of Homebuilders, Chuck shares his experience and knowledge with us through a series of essays. For more information, please call 860-644-1128, email Chuck@chuckoakes.com, or visit www.chuckoakes.com.
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First, Care for Yourself
On an airplane, an oxygen mask descends in front of you. What do you do? As we all know, the first rule is to put on your own oxygen mask before you assist anyone else. Only when we first help ourselves can we effectively help others. Caring for yourself is one of the most important—and one of the most often forgotten—things you can do as a caregiver. When your needs are taken care of, the person you care for will benefit, too.
Effects of Caregiving on Health and Well-Being
We hear this often: “My husband is the person with Alzheimer's, but now I'm the one in the hospital!” Such a situation is all too common. Researchers know a lot about the effects of caregiving on health and well-being. For example, if you are a caregiving spouse between the ages of 66 and 96 and are experiencing mental or emotional strain, you have a risk of dying that is 63 percent higher than that of people your age who are not caregivers.1 The combination of loss, prolonged stress, the physical demands of caregiving, and the biological vulnerabilities that come with age place you at risk for significant health problems as well as an earlier death.
Older caregivers are not the only ones who put their health and well-being at risk. If you are a baby boomer who has assumed a caregiver role for your parents while simultaneously juggling work and raising adolescent children, you face an increased risk for depression, chronic illness, and a possible decline in quality of life.
But despite these risks, family caregivers of any age are less likely than non-caregivers to practice preventive healthcare and self-care behavior. Regardless of age, sex, and race and ethnicity, caregivers report problems attending to their own health and well-being while managing caregiving responsibilities. They report:
- Sleep deprivation
- Poor eating habits
- Failure to exercise
- Failure to stay in bed when ill
- Postponement of or failure to make medical appointments for themselves
Family caregivers are also at increased risk for depression and excessive use of alcohol, tobacco, and other drugs. Caregiving can be an emotional roller coaster. On the one hand, caring for your family member demonstrates love and commitment and can be a very rewarding personal experience. On the other hand, exhaustion, worry, inadequate resources, and continuous care demands are enormously stressful. Caregivers are more likely to have a chronic illness than are non-caregivers, namely high cholesterol, high blood pressure, and a tendency to be overweight. Studies show that an estimated 46 percent to 59 percent of caregivers are clinically depressed.
Taking Responsibility for Your Own Care
You cannot stop the impact of a chronic or progressive illness or a debilitating injury on someone for whom you care. But there is a great deal that you can do to take responsibility for your personal well-being and to get your own needs met.
Identifying Personal Barriers
Many times, attitudes and beliefs form personal barriers that stand in the way of caring for yourself. Not taking care of yourself may be a lifelong pattern, with taking care of others an easier option. However, as a family caregiver you must ask yourself: “What good will I be to the person I care for if I become ill? If I die?” Breaking old patterns and overcoming obstacles is not an easy proposition, but it can be done—regardless of your age or situation. The first task in removing personal barriers to self-care is to identify what is in your way. For example:
- Do you think you are being selfish if you put your needs first?
- Is it frightening to think of your own needs? What is the fear about?
- Do you have trouble asking for what you need? Do you feel inadequate if you ask for help?
- Do you feel you have to prove that you are worthy of the care recipient's affection? Do you do too much as a result?
Sometimes caregivers have misconceptions that increase their stress and get in the way of good self-care. Here are some of the most commonly expressed:
- I am responsible for my parent's health.
- If I donʼt do it, no one will.
- If I do it right, I will get the love, attention, and respect I deserve.
- Our family always takes care of their own.
- I promised my father I would always take care of my mother.
“I never do anything right,” or “Thereʼs no way I could find the time to exercise” are examples of negative self-talk, another possible barrier that can cause unnecessary anxiety. Instead, try positive statements: “Iʼm good at giving John a bath.”“I can exercise for 15 minutes a day.” Remember, your mind tends to believe what you tell it.
Because we base our behavior on our thoughts and beliefs, attitudes and misconceptions like those noted above can cause caregivers to continually attempt to do what cannot be done, to control what cannot be controlled. The result is feelings of continued failure and frustration and, often, an inclination to ignore your own needs. Ask yourself what might be getting in your way and keeping you from taking care of yourself.
Once youʼve started to identify any personal barriers to good self-care, you can begin to change your behavior, moving forward one small step at a time. Following are some effective tools for self-care that can start you on your way.
Tool #1: Reducing Personal Stress
How we perceive and respond to an event is a significant factor in how we adjust and cope with it. The stress you feel is not only the result of your caregiving situation but also the result of your perception of it—whether you see the glass as half-full or half-empty. It is important to remember that you are not alone in your experiences.
Your level of stress is influenced by many factors, including the following:
- Whether your caregiving is voluntary. If you feel you had no choice in taking on the responsibilities, the chances are greater that you will experience strain, distress, and resentment.
- Your relationship with the care recipient. Sometimes people care for another with the hope of healing a relationship. If healing does not occur, you may feel regret and discouragement.
- Your coping abilities. How you coped with stress in the past predicts how you will cope now. Identify your current coping strengths so that you can build on them.
- Your caregiving situation. Some caregiving situations are more stressful than others. For example, caring for a person with dementia is often more stressful than caring for someone with a physical limitation.
- Whether or not support is available.
Steps to Managing Stress
- Recognize warning signs early. These might include irritability, sleep problems, and forgetfulness. Know your own warning signs, and act to make changes. Donʼt wait until you are overwhelmed.
- Identify sources of stress. Ask yourself, “What is causing stress for me?” Sources of stress might be that you have too much to do, family disagreements, feelings of inadequacy, or the inability to say no.
- Identify what you can and cannot change. Remember, we can only change ourselves; we cannot change another person. When you try to change things over which you have no control, you will only increase your sense of frustration. Ask yourself, “What do I have some control over? What can I change?” Even a small change can make a big difference. The challenge we face as caregivers is well expressed in the following words modified from the original Serenity Prayer (attributed to American theologian Reinhold Niebuhr):
“God grant me the serenity to accept the things I cannot change,
Courage to change the things I can,
and (the) wisdom to know the difference.”
- Take action. Taking some action to reduce stress gives us back a sense of control. Stress reducers can be simple activities like walking and other forms of exercise, gardening, meditation, or having coffee with a friend. Identify some stress reducers that work for you.
Tool #2: Setting Goals
Setting goals or deciding what you would like to accomplish in the next three to six months is an important tool for taking care of yourself. Here are some sample goals you might set:
- Take a break from caregiving.
- Get help with caregiving tasks like bathing and preparing meals.
- Engage in activities that will make you feel more healthy.
- Goals are generally too big to work on all at once. We are more likely to reach a goal if we break it down into smaller action steps. Once you've set a goal, ask yourself, “What steps do I take to reach my goal?” Make an action plan by deciding which step you will take first, and when. Then get started!
Example (Goal and Action Steps):
Goal: Feel more healthy.
Possible action steps:
- Make an appointment for a physical checkup.
- Take a half-hour break once during the week.
- Walk three times a week for 10 minutes.
Tool #3: Seeking Solutions
Seeking solutions to difficult situations is, of course, one of the most important tools in caregiving. Once youʼve identified a problem, taking action to solve it can change the situation and also change your attitude to a more positive one, giving you more confidence in your abilities.
Steps for Seeking Solutions
- Identify the problem. Look at the situation with an open mind. The real problem might not be what first comes to mind. For example, you think that the problem is simply that you are tired all the time, when the more basic difficulty is your belief that “no one can care for John like I can.” The problem? Thinking that you have to do everything yourself.
- List possible solutions. One idea is to try a different perspective: “Even though someone else provides help to John in a different way than I do, it can be just as good.” Ask a friend to help. Call Family Caregiver Alliance or the Eldercare Locator (see Resources list) and ask about agencies in your area that could help provide care.
- Select one solution from the list. Then try it!
- Evaluate the results. Ask yourself how well your choice worked.
- Try a second solution. If your first idea didnʼt work, select another. But donʼt give up on the first; sometimes an idea just needs fine-tuning.
- Use other resources. Ask friends, family members, and professionals for suggestions.
- If nothing seems to help, accept that the problem may not be solvable now. You can revisit it at another time.
Note: All too often, we jump from Step 1 to Step 7 and then feel defeated and stuck. Concentrate on keeping an open mind while listing and experimenting with possible solutions.
Tool #4: Communicating Constructively
Being able to communicate constructively is one of a caregiverʼs most important tools. When you communicate in ways that are clear, assertive, and constructive, you will be heard and get the help and support you need. The box below shows basic guidelines for good communication.
- Use “I” messages rather than “you” messages. Saying “I feel angry” rather than “You made me angry” enables you to express your feelings without blaming others or causing them to become defensive.
- Respect the rights and feelings of others. Do not say something that will violate another personʼs rights or intentionally hurt the personʼs feelings. Recognize that the other person has the right to express feelings.
- Be clear and specific. Speak directly to the person. Donʼt hint or hope the person will guess what you need. Other people are not mind readers. When you speak directly about what you need or feel, you are taking the risk that the other person might disagree or say no to your request, but that action also shows respect for the other personʼs opinion. When both parties speak directly, the chances of reaching understanding are greater.
- Be a good listener. Listening is the most important aspect of communication.
Tool #5: Asking for and Accepting Help
When people have asked if they can be of help to you, how often have you replied, “Thank you, but I'm fine.” Many caregivers donʼt know how to marshal the goodwill of others and are reluctant to ask for help. You may not wish to “burden” others or admit that you can't handle everything yourself.
Be prepared with a mental list of ways that others could help you. For example, someone could take the person you care for on a 15-minute walk a couple of times a week. Your neighbor could pick up a few things for you at the grocery store. A relative could fill out some insurance papers. When you break down the jobs into very simple tasks, it is easier for people to help. And they do want to help. It is up to you to tell them how.
Help can come from community resources, family, friends, and professionals. Ask them. Donʼt wait until you are overwhelmed and exhausted or your health fails. Reaching out for help when you need it is a sign of personal strength.
Tips on How to Ask
- Consider the personʼs special abilities and interests. If you know a friend enjoys cooking but dislikes driving, your chances of getting help improve if you ask for help with meal preparation.
- Resist asking the same person repeatedly. Do you keep asking the same person because she has trouble saying no?
- Pick the best time to make a request. Timing is important. A person who is tired and stressed might not be available to help out. Wait for a better time.
- Prepare a list of things that need doing. The list might include errands, yard work, or a visit with your loved one. Let the “helper” choose what she would like to do.
- Be prepared for hesitance or refusal. It can be upsetting for the caregiver when a person is unable or unwilling to help. But in the long run, it would do more harm to the relationship if the person helps only because he doesnʼt want to upset you. To the person who seems hesitant, simply say, “Why donʼt you think about it.” Try not to take it personally when a request is turned down. The person is turning down the task, not you. Try not to let a refusal prevent you from asking for help again. The person who refused today may be happy to help at another time.
- Avoid weakening your request. “Itʼs only a thought, but would you consider staying with Grandma while I went to church?” This request sounds like itʼs not very important to you. Use “I” statements to make specific requests: “I would like to go to church on Sunday. Would you stay with Grandma from 9 a.m. until noon?”
Tool #6: Talking to the Physician
In addition to taking on the household chores, shopping, transportation, and personal care, 37 percent of caregivers also administer medications, injections, and medical treatment to the person for whom they care. Some 77 percent of those caregivers report the need to ask for advice about the medications and medical treatments. The person they usually turn to is their physician.
But while caregivers will discuss their loved oneʼs care with the physician, caregivers seldom talk about their own health, which is equally important. Building a partnership with a physician that addresses the health needs of the care recipient and the caregiver is crucial. The responsibility of this partnership ideally is shared between you, the caregiver, the physician, and other healthcare staff. However, it will often fall to you to be assertive, using good communication skills, to ensure that everyoneʼs needs are met—including your own.
Tips on Communicating with Your Physician
- Prepare questions ahead of time. Make a list of your most important concerns and problems. Issues you might want to discuss with the physician are changes in symptoms, medications or general health of the care recipient, your own comfort in your caregiving situation, or specific help you need to provide care. The physician only sees a moment in time with the patient. Make sure you let him/her know what your concerns are in terms of daily care/health.
- Enlist the help of the nurse. Many caregiving questions relate more to nursing than to medicine. In particular, the nurse can answer questions about various tests and examinations, preparing for surgical procedures, providing personal care, and managing medications at home.
- Make sure your appointment meets your needs. For example, the first appointment in the morning or after lunch are the best times to reduce your waiting time or accommodate numerous questions. When you schedule your appointment, be sure you convey clearly the reasons for your visit so that enough time is allowed.
- Call ahead. Before the appointment, check to see if the doctor is on schedule. Remind the receptionist of special needs when you arrive at the office.
- Take someone with you. A companion can ask questions you feel uncomfortable asking and can help you remember what the physician and nurse said.
- Use assertive communication and “I” messages. Enlist the medical care team as partners in care. Present what you need, what your concerns are, and how the doctor and/or nurse can help. Use specific, clear “I” statements like the following: “I need to know more about the diagnosis; I will feel better prepared for the future if I know what's in store for me.” Or “I am feeling rundown. I'd like to make an appointment for myself and my husband next week.” Or “I need a way for my mother to sleep at night as I am now exhausted being up every two hours at night with her.”
Tool #7: Starting to Exercise
You may be reluctant to start exercising, even though youʼve heard itʼs one of the healthiest things you can do. Perhaps you think that physical exercise might harm you, or that it is only for people who are young and able to do things like jogging. Fortunately, research suggests that you can maintain or at least partly restore endurance, balance, strength, and flexibility through everyday physical activities like walking and gardening. Even household chores can improve your health. The key is to increase your physical activity by exercising and using your own muscle power.
Exercise promotes better sleep, reduces tension and depression, and increases energy and alertness. If finding time for exercise is a problem, incorporate it into your daily activity. Perhaps the care recipient can walk or do stretching exercise with you. If necessary, do frequent short exercises instead of those that require large blocks of time. Find activities you enjoy.
Walking, one of the best and easiest exercises, is a great way to get started. Besides its physical benefits, walking helps to reduce psychological tension. Walking 20 minutes a day, three times a week, is very beneficial. If you canʼt get away for that long, try to walk for as long as you can on however many days you can. Work walking into your life. Walk around the mall, to the store, or a nearby park. Walk around the block with a friend.
Tool #8: Learning from Our Emotions
It is a strength to recognize when your emotions are controlling you (instead of you controlling your emotions). Our emotions are messages to which we need to listen. They exist for a reason. However negative or painful, our feelings are useful tools for understanding what is happening to us. Even feelings such as guilt, anger, and resentment contain important messages. Learn from them, then take appropriate action.
For example, when you cannot enjoy activities you previously enjoyed, and your emotional pain overshadows all pleasure, it is time to seek treatment for depression—especially if you are having thoughts of suicide. Speaking with your physician is the first step. (See the FCA fact sheetDepression and Caregiving.)
Caregiving often involves a range of emotions. Some feelings are more comfortable than others. When you find that your emotions are intense, they might mean the following:
- That you need to make a change in your caregiving situation.
- That you are grieving a loss.
- That you are experiencing increased stress.
- That you need to be assertive and ask for what you need.
Remember, it is not selfish to focus on your own needs and desires when you are a caregiver—itʼs an important part of the job. You are responsible for your own self-care. Focus on the following self-care practices:
- Learn and use stress-reduction techniques, e.g. meditation, prayer, yoga, Tai Chi.
- Attend to your own healthcare needs.
- Get proper rest and nutrition.
- Exercise regularly, even if only for 10 minutes at a time.
- Take time off without feeling guilty.
- Participate in pleasant, nurturing activities, such as reading a good book, taking a warm bath.
- Seek and accept the support of others.
- Seek supportive counseling when you need it, or talk to a trusted counselor, friend, or pastor.
- Identify and acknowledge your feelings, you have a right to ALL of them.
- Change the negative ways you view situations.
- Set goals.
It's up to you!
Family Caregiver Alliance
National Center on Caregiving
(415) 434-3388 | (800) 445-8106
Email: [email protected]
FCA CareJourney: www.caregiver.org/carejourney
Family Care Navigator: www.caregiver.org/family-care-navigator
Family Caregiver Alliance (FCA) seeks to improve the quality of life for caregivers through education, services, research and advocacy. Through its National Center on Caregiving, FCA offers information on current social, public policy and caregiving issues and provides assistance in the development of public and private programs for caregivers. For residents of the greater San Francisco Bay Area, FCA provides direct support services for caregivers of those with Alzheimer’s disease, stroke, traumatic brain injury, Parkinson’s and other debilitating disorders that strike adults.
FCA Fact and Tip Sheets
A listing of all facts and tips is available online at www.caregiver.org/fact-sheets.
Depression and Caregiving
Dementia, Caregiving, and Controlling Frustration
Other Organizations and Links
Administration for Community Living
For caregiver support groups, respite providers, and other caregiving services.
ARCH National Respite Network and Resource Center
The Caregiver Helpbook: Powerful Tools for Caregivers
Who Says Men Don’t Care?
Gambone, James, PhD, Rhonda Travland, MS, 2011
How To Be a Resilient Caregiver
Passages in Caregiving
Sheehy, Gail, Harper Collins, 2010
1 Shultz, Richard and Beach, Scott (1999). Caregiving as A Risk for Mortality: The Caregiver Health Effects Study. JAMA, December 15, 1999, vol. 282, No. 23.
A special thank you the Powerful Tools for Caregivers program for permission to use information from The Caregiver Helpbook and their Powerful Tools for Caregivers Class Leader Tips Manual.The Caregiver Helpbook is highly recommended reading for caregivers.
This fact sheet was prepared by Family Caregiver Alliance. © 2003, 2012 Family Caregiver Alliance. All rights reserved.